Angela Hughes

 
 
 
 

Episode 5: Angela Hughes

At the age of 44 Angela was diagnosed with Charcot-Marie-Tooth disease, a progressive and degenerative condition. For many years Angela fought hard to continue living as she always had, to work hard, to keep busy, and crucially to stay active. But eventually the realities of living with CMT took their toll, forcing her to make changes that Angela found hard to accept emotionally. As Angela explains living with a rare disease can be hard, “it changes your perception of life. You have to learn to live with chronic pain. You have to learn to live with mobility issues.” And for Angela, it meant having to learn to live in a way she couldn’t imagine, and with which she is still at times having to come to terms with, to accept.

 
Ceridwen Hughes