IWAN

“He loves soft play and swimming. He would like to go to the beach every day but is equally as happy with his ipad or some bubbles.”

Iwan had his first seizure at 8 months. It lasted for fifty minutes and by the time it had finished, he was in A&E. This became a regular event for Iwan, having up to 8 prolonged seizures a day and needing 'rescue medicines', as he couldn’t stop his seizures without medical help.

“His seizures are better controlled now as he takes 3 anti-epileptic drugs, twice a day. Children with Dravet (Iwan included) also have hypermobilty, ataxia and are generally unsteady, requiring help to get around. Iwan was diagnosed with Autism as well which is common in Dravet. He is impulsive, unpredictable and has no awareness of danger”.

Despite his complex condition, Iwan is deeply loved by his family and brings happiness to those he meets.

FIND OUT MORE

DRAVET SYNDROME

Often described as a complex form of epilepsy, Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK.

As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of learning disability and other issues, such as autism, mobility problems, speech difficulties and feeding problems.

To learn more about Dravet Syndrome click here.

Source: https://www.dravet.org.uk/about-dravet-syndrome/

Dravet Syndrome UK

Dravet Syndrome UK was created in 2008 by a group of parents who came together looking for support, resources and information relating to a rare, little known neurological condition called Dravet Syndrome. Their mission “is to bring hope to families living with Dravet Syndrome through support, education and medical research”.

To learn more about how Dravet Syndrome UK can support you, click here.

Source: https://www.dravet.org.uk/about-us/

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