The Rare Navigator service is the first of its kind in the UK.
We support families directly in their community whatever their rare disease. Our local knowledge ensures we can assist families to navigate the often difficult rare disease journey.
At Same but Different, we strive to make a positive difference to the lives of those affected by rare diseases. Through our Rare Navigator service, we offer emotional and practical support and information to individuals, their families and all involved in their care, from the point of diagnosis and beyond.
Our family-focused care co-ordination and advocacy service aims to ensure that each family is able to access the level of support they require to meet their needs. Our team can help you to access beneficial services and equipment, and can provide helpful information, tools and resources that encourage understanding of rare diseases and how it may affect your family.
We work closely with national and local health and social care providers to ensure that our families are informed and have access to optimum care, treatment and services that can assist daily life and increase opportunities for independence and social interaction.
“You have literally done more for me in the last few weeks than anyone else has in terms of help and support. You’ve been brilliant and this new service has made a huge difference.”
RAREresources
Our RAREresources have been created alongside rare disease families.
The short information sheets found on the RAREresources page and can help answer questions you may have at whatever stage you are at in your diagnostic journey.
Our rare navigator team is dedicated to supporting families affected by rare diseases throughout North Wales.
For more information, please contact us using the button below or via email: enquiries@samebutdifferentcic.org.uk or via phone on: 01352 757007
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