Community Support.

For the last seven years, we have been working with rare disease families to help them share their experiences through the arts. We have been listening to their needs and, with their help, have created RAREhub.

RAREhub provides a range of support options for you, and your family, to access whenever and however you feel you need it.

Watch the video to find out how RAREhub can support you.

“Ali, you were the first person to both understand the medical side of the syndrome, the NHS processes that needed to be travelled through and also the emotional impact on us. I don’t think we could have got through those early weeks of worry without you.”

— Rare Disease Parent using the RAREnavigator Service

Find out more about each area of RAREhub or contact us below.

RAREnavigator

Specialised support tailored to you and your families need.

RAREchatUK

Our supportive online Facebook group.

RAREevents

Professional ‘all-in-the-room’ events, specialised talks and community workshops. Watch this space!

RAREresources

Helpful resources, for families and professionals, offering support at any stage in your diagnostic journey.

RAREhuddles

Small, welcoming groups that meet to discuss life with a rare condition.

RAREwalks

Combine the benefits of a healthy walk with a cathartic chat.

Get in Touch

We will be happy to discuss event collaborations and referrals to our RAREnavigator team (advocacy & care co-ordination). You can email us at enquiries@samebutdifferentcic.org.uk or visit our contact page and fill in our online form.

Contact the RAREhub