TOMOS
He is the youngest of 4 children and has a very happy personality. A big Manchester United fan, he recently met Rio Ferdinand and told him that his dream was to be United’s next goal keeper. He loves to go horse riding, play wheelchair rugby, bake with his Mum and has just learnt to swim 5m unaided….a fact he is very proud of!
Tomos has conditions known as Spina Bifida and Hydrocephalus. Although unable to walk or stand, he works hard to keep up with his peers at school. There are highs and lows as having Hydrocephalus can make keeping up with school work tricky at times, and it’s not always easy to join in football games in the playground, but his determination makes him keep on trying.
Spina Bifida literally means “split spine” and is a birth defect where there is incomplete closing of the backbone and membranes around the spinal cord. No one is certain what causes the condition. For Tomos, this means paralysis from the waist down, double incontinence and Hydrocephalus - an abnormal accumulation of cerebrospinal fluid around the brain.
As a consequence of his condition, Tomos has had to have a lot of surgeries, frequent hospital appointments and daily physio. Despite these challenges, he doesn't let any of it stand in the way of doing all the normal things an 8 year old boy likes to do.
FIND OUT MORE
Spina Bifida
Spina bifida translates as ‘split spine’ - a fault in the development of the spinal cord and surrounding bones (vertebrae) which can leave a gap or split in the spine. The spinal cord does not form properly, and may also be damaged.
To find out more about Spina Bifida click here.
Source: https://www.shinecharity.org.uk/spina-bifida/what-is-spina-bifida
Hydrocephalus
‘Hydrocephalus’ describes conditions in which there is a build up of excess cerebrospinal fluid (CSF) in the chambers of the brain, it compresses the surrounding tissue and raises the pressure inside the skull. Hydrocephalus comes from the Greek ‘hydro’ meaning water and ‘cephalie’, meaning brain.
To find out more about Hydrocephalus, click here.
Source: https://www.shinecharity.org.uk/what-is-hydrocephalus/what-is-hydrocephalus
SHINE Charity
Shine is the UK Charity for Spina Bifida and Hydrocephalus. They: “provide specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff. Shine enables people to get the best out of life”.
Visit their website and find out more about ‘Shine’ by clicking here.
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