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Mo smiles to the camera for her portrait photograph

What matters most?


Mo

Mo lives with her husband Graham in Llandrindod Wells. They moved to Powys in 1984, running a small printing business initially and raising their son. The couple moved closer to town in 2000 and Mo then worked at the local Primary school offering after-school and holiday clubs. It fitted their lives perfectly.

 
 

“I retired about 10 years ago. We moved to a bungalow and we were developing the garden, we just plodded along. 5 years ago, in 2018 I was diagnosed with breast cancer. I had a lumpectomy and radiotherapy, I didn't want chemo, because it hadn't spread that much or hadn't spread throughout my body. Things were going okay. Until last year, it came back. They wanted to do a mastectomy, and I knew years ago I didn't, it just isn't what I want. I know what having a mastectomy would be for me, I think I'd have lost the will to live anyway. It just terrifies me.”

“I went down the road of anything other than that. When it came back, I was persuaded to try chemo which did not agree with me. It was in tablet form and was supposed to be one of the weakest forms, less toxic. It just didn't suit me. I was really ill, I lost lots of weight. I had other symptoms I had terrible heartburn and felt sick all the time.” Mo decided to stop treatments and discussed things with her consultant and the breast care nurses. Her care was transferred over to the palliative care team. “I was told about this place, the Bracken Trust, and Janet the palliative care nurse came to see me quite quickly. So since then, it's just been trying to keep as well as I can.

Mo first discovered the lump whilst showering in March and saw her GP. She was quickly referred to Hereford hospital where she was diagnosed with stage one breast cancer and received surgery to remove the lump on the 1st May. “They had caught it early, it was stage one, but it was a grade three cancer. I recovered and the following year, I got an all-clear, which went on for four years. When it came back, I knew it was pretty bad. That's when I just decided not to have any further aggressive treatment.”

Mo shared many discussions with her husband Graham about her diagnosis and treatment options. They both came to terms with her terminal cancer and what would be best for her and them moving forward. “We had quite in-depth conversations, when I was first diagnosed, and when it came back. He says he agrees with me and I believe him, because he feels better if I'm feeling okay. When I was ill it was awful for him. I don't want him to have lots and lots of horrible memories. He's been really supportive, because he's my carer now… He’s probably hiding certain feelings from me, but we are quite open with each other. I've had a good life. I’ve been very fortunate, in many ways and I've had sadness but if you've got some happiness as well, then I think you should focus on that. Graham knows how I feel, my wishes and my philosophy in life. At the moment, it's okay. I've had what eight months of palliative care and I think the pain levels, the pain management is working.”

The treatments that Mo has faced from the diagnostic tests such as mammograms and biopsies to the surgery and chemotherapy have been very invasive and painful for her and helped her to make her decision with Graham's support to move to palliative care. “When I was having all the treatments and tests it was quite uncomfortable. The core biopsy was horrendous. It's the worst thing I think that I've ever had. It was so painful. I thought why am I putting myself through all this? All it's doing is giving me more pain. I am also thinking about Graham and having to see him drive all these distances and the worry of looking after me at the end. I know it's going to get me in the end and I don't want to be clinging on to straws. The quality of life is far more important than the length as far as I'm concerned. So that's how I feel about it.”

 
 

“I suppose I thought about the fact that there was terminal cancer, but I was on the positive side and five years can seem quite a long time. And it seemed perfectly alright to me to expect that at my age. If I got five years, I'd be happy. 10 years would be amazing. So I didn't think any more than that, to be honest. I was more worried about how Graham would cope with my illness and not being there because we are very close and I worried sick about how our son John would cope. Once I'd got the 5 to 10 years I thought well, I'm lucky that's okay. Now it seems to have gone very quickly.”

Mo knows that her choice is right for her and acknowledges that everyone is different and what is right for her isn’t right for everyone else. “I do believe that it depends very much on your own circumstances. If I had young children, it would be different. I know it would be different. I've been given a life. And I've been lucky most of the time. I just don't want to feel ill all the time. When I wake up and I'm feeling okay, I can garden, I've picked up my knitting and my sewing again. We plan for the garden. Last spring, I planned for late summer and tried different plants and things I fancied growing. Now we've bought loads of bulbs, which we are trying to get into the ground and the pots for next spring. I'm not thinking any further than that. I'll try and make it to snowdrop time. I'll try and make it to different flowers that are going to come into the garden. I'd like to see them again. So that's the way I look at it. There's always something in the garden to make me smile. I like seeing the garden change. There's always something in flower from snowdrops, right the way around through the year, to the winter jasmine that started in November.”

 
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An image of Mo taken by Ceridwen Hughes

“I suppose I thought about the fact that there was terminal cancer, but I was on the positive side and five years can seem quite a long time. And it seemed perfectly alright to me to expect that at my age. If I got five years, I'd be happy. 10 years would be amazing. So I didn't think any more than that, to be honest. I was more worried about how Graham would cope with my illness and not being there because we are very close and I worried sick about how our son John would cope. Once I'd got the 5 to 10 years I thought well, I'm lucky that's okay. Now it seems to have gone very quickly.”

Mo knows that her choice is right for her and acknowledges that everyone is different and what is right for her isn’t right for everyone else. “I do believe that it depends very much on your own circumstances. If I had young children, it would be different. I know it would be different. I've been given a life. And I've been lucky most of the time. I just don't want to feel ill all the time. When I wake up and I'm feeling okay, I can garden, I've picked up my knitting and my sewing again. We plan for the garden. Last spring, I planned for late summer and tried different plants and things I fancied growing. Now we've bought loads of bulbs, which we are trying to get into the ground and the pots for next spring. I'm not thinking any further than that. I'll try and make it to snowdrop time. I'll try and make it to different flowers that are going to come into the garden. I'd like to see them again. So that's the way I look at it. There's always something in the garden to make me smile. I like seeing the garden change. There's always something in flower from snowdrops, right the way around through the year, to the winter jasmine that started in November.”

 
 

 “Janet's wonderful. I can phone if I need anything, or I'm worried about anything, the girls here are lovely. Having the therapist really helps, I have the massage therapies to make me feel better. I've got a load of mashup massages myself, which I put on. It's like a ritual. I used to do yoga and stuff like that. So, it's a nice way to start the morning…That's what's happening now. I hope it continues… I don't think I'm going to have a change of personality. We’ve done all we can to make things comfortable for each other.”

At the moment Mo is feeling ok and not in pain, her medication helps and her last round of radiotherapy in the spring helped. “I can reach more things, I can put the washing on the line again, I can reach the tumble dryer, things as simple as that. I can fold the sheets. I couldn't do that. So radiotherapy seems to have been better for me. They've said, I can have it again if I want to. But we'll see how it goes. As long as I'm feeling okay, then I will carry on, and hope we've got a bit longer. But I'm not in panic mode at the moment. And I hope to keep it like that. Who knows what happens at the end? I might end up saying, ‘Oh, give me this, give me that’ but I don't think so. Once I've made my mind up, I usually stick to it. I've signed a DnR (Do not Resuscitate Order) and Graham has power of attorney for me. It's like I've got to the end of my shopping list. I will just take well a month at a time I suppose I'm looking ahead because I'm not feeling too bad.”

The Bracken Trust Cancer Support Centre supports both Mo and Graham, it is invaluable to the couple. “It's not all doom and gloom here and it's got a really nice, calm atmosphere. It's helped me a lot. Graham's quite happy as he said, he’ll read the paper while I am here and the nurses come and talk to him. If he wants to talk, they're there. If he doesn't want to talk, then they don't. Nobody forces you into anything but you know that you can ask for help. I sound like an advert for the Bracken Trust, I suppose. But they have been really good for me. I know the NHS is in a terrible situation at the moment but somewhere like this can give a bit of peace, particularly for people who haven't got support. It’s helped me to know that Graham will have support.”

Mo believes having access to the centre helps keep her calm and supported through her palliative care. “I'm very much one of the if it's going to happen, it's going to happen and you just have to get on with life. But I think the feeling of calm is helped by a place like this. Some people don't have that, which I think is wrong. It’s sad! Most people now know my situation, my immediate neighbours and friends and are kind and supportive. But it does help to have somewhere you can completely be yourself. Where you can say I feel awful today or I'm really worried about this and that. Just knowing you can come to some little place where there's nothing expected of you. They're just there to listen and respond to what you want. I think this place, that's the sort of mission statement, and I think they fulfil it really well.”

Mo and Graham look lovingly into each other's eyes

Mo takes comfort that Graham will have support when she passes and it is what matters most to her at the moment. “I don't want Graham to be too upset and that he will ask for help and support afterwards. I think the people here will help, he'll need someone to talk to, we are like two sides of a coin and we've been together for over 40 years, we've been through quite a lot. So it's going to be awful for him, as it would be awful for me. Whoever's left, it's really sad. That bothers me. But he tells me not to bother. He's far more practical than I am. I mean, I don't even drive I'd be absolutely useless. So he says, that's a good thing. If he's there for me. And he says, I'll be with you sooner or later. I'm concerned about him. But I think he'll be okay, as long as he asks for some help.”

When it comes to her death, she is calm and accepting “I am not morose about it. I'm not even scared at the moment as long as the pain is dealt with. I don't want to have a particularly painful death. I want to be remembered. That I was quite a nice person. I hope I haven't done too much harm in my life. I'd like people to have fond memories. I don't want people to be sad, because I've had a good life.”


 

What matters most?


Graham

Graham was born in London before meeting his wife, Mo, and they both moved to Llandrindod Wells. “I had a school friend, who got married and moved to North Wales, where Mo was living and we just met up there. Simple as that.”

Graham looks to camera for a portrait photograph

“Our son Johnny's 35 so we must have been together at least five years before so it's got to be 40 years. So that said you get less for murder.” Seeing the couple together is beautiful, the relationship and bond they share is evident. Sadly, Mo has been diagnosed with terminal cancer and the couple are drawing on each other's strength and support to face it together.

Mo was originally diagnosed 5 years ago and they were confident it could be treated and they could move on with their lives. “Hereford said it was cancerous but it was only very small and they could do surgery. She had four weeks of radiotherapy, we had to go every day, which was a bit of a pain, but then it was all fine. There were a few tears, obviously, but the help of the Macmillan unit there was brilliant. They were really supportive. We just came to terms with it really. There’s no use dwelling on it. You just got to move forward. Once the lump was removed, and she was taking the pills it was like it never happened until she found the next two lumps, which weren't too clever.”

Having had regular checks, 4 years after the initial diagnosis she found a lump in her other breast, which after having tests and scans turned into two further lumps. The diagnosis had changed. Mo knew she didn’t want a mastectomy from the start and knew she didn’t want aggressive treatments that would change her life, deciding on quality over quantity. “All they can offer is a double mastectomy, which she doesn't want, so it's now a terminal diagnosis, which is difficult to come to terms with but you just have to!”

Both Graham and Mo discussed her treatments and what would change for them both. Graham is fully supportive of his wife and the choices she has made. “I agree with her, I can't see the point of prolonging it, because it's just going to make it worse and drag it out, which I don't think is a very good thing for either of us. I try not to show too much how I am feeling because it isn’t going to do any good. I've got to look after her. I don't want to put any more burden on her than she's already got. So, I just keep it inside, but I can't see there's any alternative, really.”

 
 

The Bracken Trust offers support to the couple and Mo enjoys her visits. Graham will take his wife for her treatments and appointments at the trust and he will read the paper and wait, but he hasn’t engaged in support for himself currently. “Well, I know they're there if I need them. At the moment, I don't really because I think I'm coping quite well, to be honest with you. But I know where they are. If I need them, I can just turn up anytime I feel like.”

Facing the future without his wife is something he thinks about and admits it is difficult and he is unsure of how he will cope with it after being together for so long. “I know I am going to be pissed off, going to be obviously unhappy because that's inevitable after 40 years. I am self-sufficient in the fact that I do the shopping and the washing and all those things now, so that'll be all right, that side of things. But it's just the emotional side that I don’t know how I am going to cope.”

 
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Holding hands

The Bracken Trust offers support to the couple and Mo enjoys her visits. Graham will take his wife for her treatments and appointments at the trust and he will read the paper and wait, but he hasn’t engaged in support for himself currently. “Well, I know they're there if I need them. At the moment, I don't really because I think I'm coping quite well, to be honest with you. But I know where they are. If I need them, I can just turn up anytime I feel like.”

Facing the future without his wife is something he thinks about and admits it is difficult and he is unsure of how he will cope with it after being together for so long. “I know I am going to be pissed off, going to be obviously unhappy because that's inevitable after 40 years. I am self-sufficient in the fact that I do the shopping and the washing and all those things now, so that'll be all right, that side of things. But it's just the emotional side that I don’t know how I am going to cope.”

 
 

Currently, Mo is doing well and the pain medication is working so the couple spends their time doing what they can together and enjoying each other's company like they always have, sharing their love and their laughter. Graham would like to see his wife eat more but her appetite has decreased. “If only she could eat more. That's the new problem we have got. She also used to love a little brandy in the evening but she's gone right off alcohol. It's bizarre, I guess all these drugs have just messed her up completely, she's on so much that I don't think alcohol would mix so it's not surprising she’s going off things. We have always had a laugh together. I really wanted to be a stand-up comedian. You can't take things too seriously. Because it's just not worth it. Just get your day on.”

The world is changing for the couple fast, Graham admits he is from a different time, a different upbringing from the children of today. His outlook may not be the same as others and he keeps his own council and accepts that is who he is. He wouldn’t offer anyone unsolicited advice acknowledging that what works for some won’t work for others and that every relationship is different and everybody's different.

“I know we have the Bracken Trust so if someone was in my shoes, I would tell them to look for places like this as you’ve got someone to turn to who have got experience with these things. But, I couldn't really give anybody any advice, because it's not my place. If they asked for help, I'm sure I'd give it but I wouldn't just come out and say ‘You should do this. You should do that.’ I wouldn't like anybody to say that to me, so I certainly wouldn't say it to anybody else. I was born in 1949, it's just the way I’ve been brought up. It’s different for the next generations because the world is a different place. But just after the Second World War, when I was growing up, everything was black and white.”

The couple do not know how long Mo will survive and are taking it all as it comes. They have both accepted it and are facing it together. His life with Mo means the world to him and despite life's hiccups, they have come through it together. “What matters most to me is that I can do all I can to keep her happy. If she's happy then I'm okay. I just don't want her to worry. She worries about John our son. and there's nothing I can do about that… Our lives are pretty perfect I reckon… We have a proper love story. I mean, we have both been married before so we knew what we were looking for. And we found it. Simple as that.”

 
 

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The Bracken Trust

The Bracken Trust supports anyone affected by cancer including patients, bereaved relatives and families/carers. From their base in the beautiful Llandrindod Wells, Powys, the offer information, advice, support, counselling and complementary therapies. The Bracken Trust have created and exceptional centre for cancer care and empowers people to live with, through and beyond cancer.

To learn more about the Bracken Trust, click here.

Source: https://brackentrust.org.uk

Macmillan Cancer Support

Macmillan Cancer Support provide services for people living with cancer at every stage of their cancer experience. Macmillan provide emotional, practical, physical and financial support and are 98% funded by voluntary donations. Fundraising for Macmillan is essential to make sure they can deliver the vital support people living with cancer need.

To learn more about Macmillan Cancer Trust, click here.

Source: https://macmillan.org.uk

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