The zebra is the internationally recognised symbol of rare disease and by wearing these masks you are showing your support for the community, whilst supporting the work we do to help families through our Rare Navigator service.

The service is the first of its kind in the UK. We support families directly in their community, whatever their rare disease. Our local knowledge ensures we can assist families to navigate the often difficult rare disease journey.  We offer emotional and practical support and information to individuals, their families and all involved in their care, from the point of diagnosis and beyond.

Our individualised support and advocacy service aims to ensure that each family is able to access the level of support they require to meet their needs. Our team can help you to access beneficial services and equipment, and can provide helpful information, tools and resources that encourage understanding of rare diseases and how it may affect your family.