Rare Project — Blog posts for Same but Different — Same but Different

Posts tagged Rare Project

Charlie - Immune thrombocytopenic purpura (ITP)

Charlie - Immune thrombocytopenic purpura (ITP)

Ceridwen HughesSeptember 27, 2018Ceridwen Hughes, Rare Project, ITP, Charlie, Immune thrombocytopenia Comments

Poppy and Ffion - Marfan Syndrome

Poppy and Ffion - Marfan Syndrome

Ceridwen HughesSeptember 9, 2018Ceridwen Hughes, Rare Project, Marfan syndrome, Poppy and Ffion 2 Comments

Phoebe - Ehlers Danlos Syndrome

Phoebe - Ehlers Danlos Syndrome

Ceridwen HughesAugust 11, 2018Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, sensory issues, sleep disorder, non-verbal, severe learning disability, PhoebeComment

Jake - Angelman Syndrome

Jake - Angelman Syndrome

Ceridwen HughesJuly 10, 2018angelman syndrome, Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, anxiety, sensory issues, sleep disorder, non-verbal, severe learning disability, Jake 2Comment

Poppy

Ceridwen HughesJune 27, 2016Rare Project, rare disease, Ceridwen Hughes, Marfan syndrome, same but differentComment

Barbara

Barbara

Ceridwen HughesMay 23, 2016same but different, Rare Project, rare disease, Ceridwen Hughes, MS, Multiple sclerosisComment

Zakiyyah

Ceridwen HughesMay 10, 2016Rare Project, rare disease, Same but Different, Ceridwen Hughes, Tyrosinaemia, inherited metabolic disease Comments

Emily

Emily

Ceridwen HughesMay 3, 2016Ceridwen Hughes, Same but Different, Russell Silver Syndrome, Rare Project, rare disease Comment

Hannah

Hannah

Ceridwen HughesApril 15, 2016Ceridwen Hughes, rare disease, Rare Project, Same but Different, Cornelia de Lange syndrome Comment

Noah & Freddie

Noah & Freddie

Ceridwen HughesApril 1, 2016Noah & Freddie, Same but Different, Ceridwen Hughes, rare disease, Rare Project, x-linked periventricular nodule heteropia, epilepsy Comments

Holly

Holly

Ceridwen HughesMarch 16, 2016Holly, Ceridwen Hughes, Ceridwen Barkley Photography, Same but Different, Rare Project, rare disease, GA1, glutaric acidura type 1 Comments

Lachlan

Lachlan

Ceridwen HughesFebruary 21, 2016Lachlan, Ceridwen Hughes, Ceridwen Barkley Photography, Same but Different, Rare Project, rare disease, Periodic Hypothermia Comments

Nina

Nina

Ceridwen HughesFebruary 20, 2016Ceridwen Barkley Photography, Ceridwen Hughes, Same but Different, Rare Project, rare disease, Nina, Abnormality in Adam 17 Gene, extreme photosensitivity Comment

Alex - GA1

Alex - GA1

Ceridwen HughesFebruary 16, 2016GA1, glutaric acidura type 1, Alex, Ceridwen Barkley Photography, Ceridwen Hughes, rare disease, Rare Project, Same but Different Comments

Eddie

Eddie

Ceridwen HughesFebruary 12, 2016Ceridwen Barkley Photography, Ceridwen Hughes, rare disease, Rare Project, Same but Different, porencephalic cyst, porencephaly, neurological disorder, corticol visual impairement, west's syndrome Comments

Alex

Ceridwen HughesFebruary 9, 2016Leigh's Disease, idiopathic intracranial hypertension, Ceridwen Hughes, Ceridwen Barkley Photography, Same but Different, Alex, Rare Project, rare disease Comments

Percy

Percy

Ceridwen HughesJanuary 31, 2016Prader Willi Syndrome, Ceridwen Barkley Photography, Ceridwen Hughes, Same but Different, Rare Project, rare diseaseComment

James

James

Ceridwen HughesJanuary 27, 2016Ceridwen Barkley Photography, Ceridwen Hughes, Same but Different, Rare Project, rare disease, inherited metabolic disease, coffin lowry syndrome, learning difficultiesComment

Jake

Jake

Ceridwen HughesJanuary 17, 2016angelman syndrome, Ceridwen Hughes, Ceridwen Barkley Photography, rare disease, Rare Project, anxiety, sensory issues, sleep disorder, non-verbal, severe learning disability Comments

Katja

Katja

Ceridwen HughesJanuary 12, 2016moebius syndrome, Katja, Same but Different, Ceridwen Barkley Photography, Ceridwen Hughes, rare disease, Rare Project Comment