Jacob - X-linked Hypohidrotic Ectodermal Dysplasia Ceridwen HughesMay 23, 2019MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment
Ryley - Cystinosis Ceridwen HughesMay 23, 2019MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment
Lucy Ceridwen HughesApril 2, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment
Ryan Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFT Comment
Megan Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment
Sebastian Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment
Katie-Ann Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment
Thomas Ceridwen HughesMarch 26, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFTComment
Arlo Ceridwen HughesFebruary 20, 2019same but different, rare disease, Ceridwen Hughes, Edwards syndrome, SOFT Comments
Amy - Cockayne Syndrome Ceridwen HughesNovember 25, 2018MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment
Charlie - MECP2 Duplication Syndrome Ceridwen HughesOctober 30, 2018MECP2 Duplication Syndrome, same but different, rare disease, Ceridwen HughesComment
Poppy Ceridwen HughesJune 27, 2016Rare Project, rare disease, Ceridwen Hughes, Marfan syndrome, same but differentComment
Barbara Ceridwen HughesMay 23, 2016same but different, Rare Project, rare disease, Ceridwen Hughes, MS, Multiple sclerosisComment